Patient organisations (813)

The Svenska FOP-föreningen was established in 2004 and is headquartered in Sweden. It operates as a non-profit organization dedicated to supporting individuals affected by Fibrodysplasia Ossificans Progressiva (FOP), a…

Svenska Glaukomförbundet, grundat den 15 november 1999, är en ideell och fristående organisation med säte i Sverige. Organisationen bildades av representanter från lokala glaukomföreningar i Göteborg och Stockholm…

The Swedish Pain Society (SPS) was established in 1995, initially known as Svenskt Smärtforum. It was founded in response to a clear need within the professional community for a platform dedicated to discussions on pain…

The Swiss Association against Osteoporosis, known as the Association Suisse contre l'Ostéoporose (ASCO) and Schweizerische Vereinigung gegen die Osteoporose (SVGO), was established in 1989. The organization was founded…

The Swiss Heart Foundation was established in 1967 by a group of proactive physicians. It is headquartered in Bern, Switzerland, and operates as a non-profit organization. Since its inception, the foundation has been…

SNEGID, the Swiss Network for Eosinophilic Gastrointestinal Diseases, was established in 2020. It is a Swiss non-profit organization headquartered in Epalinges, Vaud. The organization is led by medical specialists and…

The Swiss Sarcoidosis Association (SSARV) was established on July 8, 1999, in Rheinfelden, Argovia. It operates as a non-profit organization under the legal framework of the Swiss Civil Code. The association's…

Tackle Prostate Cancer, officially known as The National Federation of Prostate Cancer Support Groups, was established as a charity in 2008. However, its roots trace back to the mid-1990s with the formation of…

The Aspergillosis Trust (AT) was established in 2021 as a registered charity in the UK, with its headquarters located in Preston. The organization was founded by patients who suffer from Aspergillosis, a rare and…

The Brain Tumour Charity was established in 1996 and is headquartered in Farnborough, England. It operates as a registered charity under the legal form of a charitable organization. The charity was formed through the…

The British Pain Society, established in 1979, is the oldest and largest multidisciplinary professional organization in the field of pain within the United Kingdom. Initially registered as the Intractable Pain Society…

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The Gauchers Association, established in 1991, is a registered charity based in London, UK. It was founded by a group of individuals affected by Gaucher disease, with the aim of providing support and information to…

The Lily Foundation was established in 2007, inspired by the life of Lily Merritt, who passed away from mitochondrial disease at just eight months old. The organization is headquartered in Warlingham, Surrey, and…

The Pituitary Foundation, established in 1994, is a registered charity headquartered in Bristol, UK. It operates as a non-profit organization dedicated to supporting individuals affected by pituitary conditions. The…